Medical advice about implanted cardiac defibrillators obtained via an online message board appears to be accurate only half of the time, according to preliminary research presented at the American Heart Association’s Quality of Care and Outcomes Research Scientific Sessions 2018, a global exchange of the latest advances in quality of care and outcomes research in cardiovascular disease and stroke for researchers, healthcare professionals, and policymakers.
The study, based on analysis of two years of messages on an anonymous online board about implanted cardiac defibrillators (ICDs), showed that about 25% of the messages contained inappropriate advice, and 6% of advice shared was controversial. Researchers analyzed 127 discussions, 82 of which pertained to medical advice in several topical areas, including cardiovascular disease, device programming and maintenance, physical activity restrictions, and management of other health conditions.
The research team said the findings underscore the need to ensure that clinicians follow up with patients about their information sources to ensure they are receiving accurate advice outside of the doctor’s offices. Ensuring appropriate advice is particularly important when it comes to complex decisions about advanced procedures, tests and interventions such as the decision to have an ICD, the study authors added.
ICDs are miniature devices surgically implanted in the heart to fire off electric shocks that interrupt potentially lethal arrhythmias and restore normal heart rhythm. Between one and two million people live with ICDs in the United States, the study authors said, and some 130,000 new devices are implanted in patients each year.
Given how common patient use of online medical information is, clinicians must be aware of the potential their patients will be exposed to inaccurate or dangerous information, the research team said.