Trump administration announces MyHealthEData initiative to put patients at the center of the US healthcare system

March 9, 2018

The Centers for Medicare & Medicaid Services (CMS) Administrator Seema Verma announced a new Trump Administration initiative – MyHealthEData – to empower patients by giving them control of their healthcare data, and allowing it to follow them through their healthcare journey.

The governmentwide MyHealthEData initiative is led by the White House Office of American Innovation with participation from the Department of Health and Human Services (HHS)—and its Centers for Medicare & Medicaid Services (CMS), Office of the National Coordinator for Health Information Technology (ONC), and National Institutes of Health (NIH)—as well as the Department of Veterans Affairs (VA). The initiative is designed to empower patients around a common aim—giving every American control of their medical data.

MyHealthEData will help to break down the barriers that prevent patients from having electronic access and true control of their own health records from the device or application of their choice. Patients will be able to choose the provider that best meets their needs and then give that provider secure access to their data, leading to greater competition and reducing costs.

The MyHealthEData initiative will work to make clear that patients deserve to not only electronically receive a copy of their entire health record, but also be able to share their data with whomever they want, making the patient the center of the healthcare system.  Patients can use their information to actively seek out providers and services that meet their unique healthcare needs, have a better understanding of their overall health, prevent disease, and make more informed decisions about their care.

In an address at the Healthcare Information and Management Systems Society (HIMSS) Annual Conference in Las Vegas, Verma also announced the launch of Medicare’s Blue Button 2.0—a new and secure way for Medicare beneficiaries to access and share their personal health data in a universal digital format. This enables patients who participate in the traditional Medicare program to connect their claims data to the secure applications, providers, services, and research programs they trust.

For example, Medicare’s Blue Button 2.0 will allow a patient to access and share their healthcare information, previous prescriptions, treatments, and procedures with a new doctor, which can lead to less duplication in testing and provide continuity of care. Medicare’s Blue Button 2.0 is expected to foster increased competition among technology innovators to serve Medicare patients and their caregivers, finding better ways to use claims data to serve patients’ health needs.

More than 100 organizations, including some of the most notable names in technological innovation, have signed on to use Medicare’s Blue Button 2.0 to develop applications that will provide innovative new tools to help these patients manage their health.

In her remarks, Verma specifically called on all healthcare insurers to follow CMS’s lead and give patients access to their claims data in a digital format.

Additionally, CMS intends to overhaul its Electronic Health Record (EHR) Incentive Programs to refocus the programs on interoperability and to reduce the time and cost required of providers to comply with the programs’ requirements. CMS will continue to collaborate with ONC to improve the clinician experience with their EHRs.

Verma said CMS has implemented laws regarding information blocking—a practice in which providers prevent patients from getting their data. Under some CMS programs, hospitals and clinicians must show they have not engaged in information blocking activities.

CMS link to Verma’s speech

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